Showing posts with label occipital neuralgia. Show all posts
Showing posts with label occipital neuralgia. Show all posts

Friday, December 9, 2016

Celebrate The Small Things -- Dec 9


It's Friday and I'm Celebrating The Small Things!  The brainchild of ViklitCelebrate The Small Things is a weekly celebration where some bloggers have decided to post about something worth celebrating...no matter how big or small it is.


Today I'm celebrating...

  • I started using a new medicine last week, in hopes of controlling the nerve pain from my occipital neuralgia (click here for more information on what this is and why I have it). I'm happy to say, so far, so good! I still have pain, but the medicine puts a good dent in it.

  • I made my first body butter in two years! My aging skin (boo...hiss...) had started to really dry out a few years ago, so I started making my own soaps, in hopes of healing and moisturizing my skin (click here to see some cool soaps I made). I also started on the path of lotions and body butters. As soon as I started getting into the swing of things, I had a very bad arthritis flare up in my thumb (click here to see my very helpful thumb brace) and had to stop my new diy adventures for a while. I lost momentum and here we are two years later. But I am happy to report that my comeback body butter is great! I've been slathering it on after I get out of the shower, and periodically on my hands during the day. It's good! 

  • my awesome brother. It seems like I mention how great my brother is every few months, but he really is! This is what he sent me in the mail last week:


  • my children's humor. My son got glasses a couple of weeks ago, and here is what he did the other day to Emmie...




What are you celebrating?



If you'd like to Celebrate The Small Things, visit our wonderful host, Lexa @ Lexa Cain for more information.  And don't forget to visit her wonderful co-hosts:   LG Keltner @ Writing Off the Edge and Tonja Drecker @Kidbits Blog


I got an instagram! If anyone is looking for more pictures of Emmie, head on over there and give me a follow @thecyborgmom


Thursday, May 12, 2016

Facet Joint Injections 5/12/16

Many of you know that I have been suffering from occipital neuralgia for several years, and have tried everything from physical therapy to acupuncture (you can read more about my acupuncture journey here) to trigger point injections to facet joint injections.

The next step is a procedure called a radiofrequency nerve ablation (here is a medical link that explains the procedure). Basically this means that I will get the nerves in my neck burned off...it sounds way worse than it actually is, at least according to my doctor. Here's the catch, in order for medical insurance to pay for the radiofrequency nerve ablation, I first need to have two identical, successful facet joint procedures done.

I had my first set of injections done in Nov 2013 (which I documented herehere, and here), and another done just a few weeks ago. The first time I had facet joint injections, the procedure almost gave me a panic attack, I was pretty sore for many days after, and they didn't give me the lasting pain relief that I had hoped for. I did not want to try them again, even though my doctor wanted me to give them another shot (pun intended!).

The problem is that the facet injections I had done a few weeks ago were done at different points in my neck in hopes that I would get better results. And the results were better this time around, but the pain relief only lasted about a week. Doc says that as long as I got relief, even for a short amount of time, that the chances of the radiofrequency nerve ablation neck procedure working are much better. That really is a mouthful.

So, today I go for my second (even though it's really my third overall) round of facet joint injections, in the adjusted spots. Wish me luck! I'll try to document these and report back. The really short version of the procedure from a few weeks ago...I was sore for a few days, but overall it was a much easier procedure (less painful) and quicker recovery. My doc prescribed valium for my anxiety, which helped a lot, and I have another prescription for today's visit :) Let's hope the relative ease of last time wasn't a fluke and I get similar results this time!

Friday, March 27, 2015

Celebrate The Small Things -- March 27


It's Friday and I'm Celebrating The Small Things!  The brainchild of ViklitCelebrate The Small Things is a weekly celebration where some bloggers have decided to post about something worth celebrating...no matter how big or small it is.  I am thrilled to co-host this wonderful bloghop!

This week I'm celebrating:

  • getting around a little easier.  It's been about a week and a half since I got my walking cast on and I'm mostly getting around with just my cane now.  My casted foot feels pretty good...the other foot is now trying to keep up.  Let's hope it gets with the program soon because I would like to go a year or two without another surgery! 
  • I celebrated the 10th anniversary of my 29th birthday this week :P  That's my story and I'm sticking too it!
  • the A to Z challenge is coming up an even though I didn't reveal a theme for this weeks theme reveal, I think I may have one now.  If you are interested in taking part of the biggest blog challenge, click here for more information.  This will be the second year I'm taking part and I'm looking forward to meeting more new people!
  • a not so small celebration...we adopted a sweet pup!  Her name is Emmie and she's about 4.  She is settling in pretty well!  Click here for my short post about her.
  • I had my quarterly shot for my occipital neuralgia this week, and normally the site where the shot was given gets pretty sore for about two days, and I have to put ice on it for the pain.  Well, either my doctor has gotten infinitely better at this procedure, or my Emmie girl is truly working some dog therapy magic.  I didn't even need to use an ice pack once!  I also didn't seem to experience any of the side effects of the steroid used in the shot.  Magic puppy.  Boom.




What are you celebrating? 



If you'd like to Celebrate The Small Things, visit our wonderful host, Lexa @ Lexa Cain for more information.  And don't forget to visit my wonderful co-host:  LG Keltner @ Writing Off the Edge
 


To celebrate with us, sign up with the linky below: 

Friday, November 7, 2014

Celebrate The Small Things -- Nov 7

It's Friday and I'm Celebrating The Small Things!  Celebrate The Small Things is a weekly celebration where some bloggers have decided to post about something worth celebrating...no matter how big or small it is.

This week has been a rough one... I had a steroid shot on Tuesday and my head has been really sore ever since.  I get this procedure done every three months to help with my occipital neuralgia.  Because it's gotten so frequent, my doctor mentioned to me that I may consider seeing a surgeon for a consult to cut off (burn off?) my occipital nerve.  I told him that I'm soooo not ready for another surgery yet!  He encouraged me to at least do some research on it so I know my options.

On a brighter note...

A super cute thing happened this week...my two year old nephew "talked" with me on the phone...really I just said hello to him and told him that I loved him.  My brother said that he waved to me and blew me kisses!  I definitely have to Skype them next time so I see the cuteness that is my nephew :)

The biggest celebration this week is my upcoming weekend...my husband and I are celebrating our anniversary a little early this month and going away to a wonderful bed and breakfast that we've been to before.  Not only will I get some alone time with my love, but I scheduled a massage for Saturday morning that should help my poor little broken body feel better.  I can't even explain in words how much I'm looking forward to a relaxing weekend and some much needed pampering and relaxation!

I look forward to catching up with everyone next week.  Happy Weekend!

Edit:  After writing my post, I realized that Nov 7 is my 1 year blogging anniversary!  That snuck up on me...I'm glad I realized it just in the knick of time!  So, Happy Bloggerversary to me!

What are you celebrating? 


If you'd like to Celebrate The Small Things, visit our wonderful host, VikLit @ Scribblings of an Aspiring Author for more information.  And don't forget to check out her co-hosts:  Diana Wilder, LG Keltner @ Writing Off the Edge, Katie @ TheCyborgMom, and CaffeMaggieato @ mscoffeehouse

 

Wednesday, August 13, 2014

Shot In The Head

http://pixabay.com/en/red-cross-doctor-nurse-cartoon-34913/
Courtesy of Nemo at Pixabay
So this past Friday I had my steroid shot for my occipital neuralgia. I call it my “shot in the head”...which sounds more terrible than it actually is, but kinda makes me sound a little badass :) This time I didn't experience the normal side effects to the steroid that I usually do. Is it possible that my body is getting used to it? That actually scares me a little.

Normally I experience insomnia either the night of, or the night after, or both. This time I didn't have this at all...thank God. And my cheeks were flushed a little bit on Sunday...which is weird, because I usually experience that the day after my shot. I guess this time my body decided it was going to do things differently! The back of my head, where I got the two shots (into the occipital nerve, and lesser occipital nerve), was tender for a few days. This is completely normal. I iced that area Friday and Saturday a few times, which helped. Sunday I just felt like overall achy crapola. I think it was the steroid's last stance or something.

This shot should last me for another few months...it seems like I go three to four months between them. I would have had this shot 3 weeks ago, but it took me that long to get an appointment! Holy hell. I brought this up to my doc and he said that if it's really-really bad to just tell the front staff and they'll try to fit me in. Ummm...I don't usually call until it's that bad! So this time I just booked an appointment for November and if I'm still feeling fine and dandy I'll just call to reschedule. My doc said that they are trying a new scheduling routine...I don't know what that means exactly...but I'm hoping that it means that it won't take 3 weeks for an appointment. He's my pain doctor...I should be able to get in quicker than that! And, thankfully, he agrees.

It's Wednesday...Happy Hump-Day all!


Wednesday, June 25, 2014

New Pain Medicine Routine

I don't know why, but over the past couple of weeks my arthritis has really been flaring up.  I've lost a lot of sleep and finally got tired of feeling so terrible.  My doctor that I see for my neck pain had originally prescribed this new medicine and I decided that I should give it a try.  It's a non-narcotic pain med called ConZip, which is really a slow release Tramadol.  I've been using it for my overall arthritis flare ups and it helps take my pain from a 5-6 to a 2-3...which is a huge difference.


I still get localized pain in my ankles if I'm on my feet too long, and in my neck/shoulder area because of my occipital neuralgia.  For these areas I have compound cream that has been helping take the edge off.  The cream I have for my ankles is a bit stronger and I'd like to try it on my neck, but it's super greasy.  After twenty minutes of absorbing into my ankles, I wipe it off with a wet washcloth otherwise it's too sticky to even get my socks back on.  I'm afraid of getting it into my hair and not being able to get it out if I try it on my neck...I'd have to be super careful.

Ankle cream ingredients


side note:  When I got my new ankle cream a couple of weeks ago it came in some very impressive  packaging.  There was a cold block in there (I guess in case it got too hot during shipment) and it was cushioned to the max.  Seriously, look at the big cushion that was in this thing.




The cushion was bigger than my 10 year old...





Also, I got 3 containers of it.  Does it get used that quickly that I need this much???  I guess we'll see.

Anyway, this has been the routine for about two weeks or so.  ConZip in the morning, Celebrex (anti-inflammatory) and Soma (to keep my back spasms at bay) at night...and cream on various body parts as needed.  It has helped keep the pain in check enough that I was able to take part in cleaning the house in anticipation of my family visiting, and I was able to enjoy the time with my brother when he was here last week.  Let's just hope this all continues to help and that I don't die of kidney or liver failure by the time I'm 50!


Friday, March 14, 2014

My Neck Is A Pain In The Neck

Since I've been struggling with neck pain again over the past three weeks or so, I went to my pain management doctor last week and got some simple lidocaine shots in the trigger points in my neck and upper back.  This helped a little...I was hoping it would help more than it did, but it did take my pain down a notch on the ole' pain scale.

Since I'm still going to physical therapy for my ankle, I asked my therapist if she could “wand” my neck.  I forget the name of that thing all the time, so I call it the wand...sonic...ultrasound...I don't remember...THE WAND.  Anyway, it's a machine with a wand attached that they rub on a small part of your body and it acts as a deep heat sort of thing.  This helped bring my pain level down another notch...so now my pain is at a 3-4...which is still painful, but doesn't usually stop me from going about my day...I'm just a little more grumpy about stuff :)  My pain doc also gave me a prescription for physical therapy on my neck, so this week my therapist did some hands on massage of my neck, right at the base of my skull.  This helped even more. Down another notch!  Now I'm in “reasonable pain I can live with” land...at least in my neck.

Hopefully, I can keep it down like this for a while longer, otherwise I have to go back to my other doctor for some steroid shots into the neck/occipital nerve area.  At the end of November, before I had my ankle surgery, I went for facet joint injections, hoping they would help calm all this pain down for a while.  And by a while, I mean longer than 3 months.  I was hoping to get 6 months to a year out of these. Notsomuch.  So I think when I do have to go back for steroid shots, I'm going to ask for the original kind I had for two years...shots into my occipital and lesser occipital nerves.  Those also lasted for about 3 months...but they didn't hurt as bad and I didn't get anxiety going in for those.

I blame all this on Mother Nature.  Seems like when we had that big snowstorm a few weeks ago, it set everything off.  I love winter, and I love snow.  But as I get older, I'm loving all this pain that comes with it less and less.  I think I just need a Disney vacation :)  Hello sunny Florida!



Wednesday, November 13, 2013

Update--Facet Joint Injections Day 2

Yesterday was the day after I had the facet joint injections on the left side of my neck at the C1, C2, and C3 levels.  Read about the injections here.  My neck was pretty sore, as well as the left side of my face a bit. On a pain scale, it was probably a 4-5 by the end of the day.

At least my body is predictable, as I suffer the same side effects whenever I get any type of steroid injection.  This is the third type I've had...the others being: occipital nerve blocks, an epidural steroid injection, and now the facet joint injections.  The three worst side effects I suffered yesterday are:

  • Insomnia
  • Neck soreness
  • Flushed cheeks

I stayed in bed all day yesterday because the night of the injections I suffered from insomnia, probably due to a combination of the neck pain and the steroid.  I was hoping to nap during the day, but my body wasn't too keen on that idea.  Oh, and I felt guilty that I kept my hubby up all night long...and not in a good way.

The neck pain was the worst in the morning and by the evening it turned into more of a soreness...like if you sleep on your neck all wrong and it gets kinked up...except a little worse.  I could move my head right, but when I tried to move it left it hurt.  The site of the injections were tender but not black and blue.

My cheeks were flushed when I woke up and my left cheek got really hot by the afternoon (approximately 24 hours after the shot).  I tried putting a cold washcloth on it, but it didn't help much. It was on fire I tell ya!  I thought my face was going to spontaneously combust it was so hot.  I took my temperature because I wanted to check and make sure I didn't have a fever.  Weirdly, my temperature was 97.4...even though my cheek temperature was probably a million.

Overall, I took it easy but was pretty uncomfortable all day.  The best part of yesterday was that I didn't wear a bra and stayed in my pj's all day.  So that was my "bright side" :)  Hoping today will be better.

Monday, November 11, 2013

Facet Joint Injections and Why I Have Neck Problems

So, I've been having issues with my neck and back for a few years now.  Basically, I have arthritis in my neck joints, and muscle and nerve related problems in my neck due to a cervical fusion I had when I was younger.

Why did I have cervical fusion?  Well, when I was first diagnosed with SED at 15, the doctors took x-rays of my entire body and concentrated on my neck and spine since it's common to have spine related problems caused by my disease.  And I was a winner (go me!) with a little bone chip that was floating in my spinal column high up in the C1-C2 area.  Looking back, there were some signs that we should have recognized.  I remember as a child going on bumper cars and getting bumped a certain way and having my entire body go numb.  Not good.  I also did a gymnastics class once and was doing somersaults and had my body go numb there as well.

The doctors told me that I was very lucky (I would say it's a miracle) that I hadn't been paralyzed (they said I would have been paralyzed to the extent that Christopher Reeve was) and sent me home in a cervical collar and I had surgery scheduled for 3 weeks later.  I had a halo put on about a week before my fusion and was in that for over four months.  I missed half of my sophomore year in high school.

Skip to 20 years later and my fusion has “settled”...like how a new house will settle after a few years.  Mine has settled and gone crooked.  If you know anything about how bones and muscles work together, than you know that your muscles try to protect your bones...and mine were getting very angry with my neck bones being crooked!  I constantly get knots in my neck and suffer from tension headaches.   It had gotten so bad that about 7 years ago I went to a neuro doc to see what was wrong.  It was him that told me that it was very common to see these fusions settle and get crooked, and the best thing for me to do was try to keep the muscles loose.  He recommended physical therapy and acupuncture (it was only years later that I finally started acupuncture).  I went to physical therapy for a few months and was able to get the muscles to a calm enough level and continued on with therapeutic massage after that about every 6 weeks (would have went longer, except that's a total out of pocket cost). 

This kept things at bay until about 2 years ago when my symptoms worsened and I was now also having constant burning down the side of my neck that would radiate to the entire side of my head into my ear and side of my face.  I went to a whole slew of new doctors and was really terrified that they were going to tell me that I needed to have my fusion redone.  Thank God that wasn't the case (seriously--THANK YOU GOD. Thank you, thank you, thank you!).  I was diagnosed with occipital neuralgia and started getting injections into my greater and lesser occipital nerves.  After my ankle surgery 5 months ago, my neck was flaring up again.  The doc who was doing my injections moved away and the new doc who replaced him wanted to try some new things that would hopefully last longer than the occipital injections.  I tried an epidural shot about 3 weeks ago that was supposed to help my neck and my back pain (yeah, I have some back issues too).   Not only did that not help, it was pretty painful for a few days.

And that brings me to today.  I called my doctors office to beg them to see me earlier than the appointment that I had already lined up for the end of November...I didn't want anything to interfere with my ankle surgery coming up.  They said they could see me this afternoon.  Woot!  The procedure I had done is called facet joint injections.  It was a bit painful at times and lasted about 10-15 minutes.  Most of the time the pain was about a 3 out of 10, with the worst of the procedure being about a 6-7.  They said that I should be mostly numb for about 2-3 hours and then I should ice it.  Well, it's been about 1.5 hours and I'm starting to feel sore and I have a very slight eyeball headache.


I was nervous about the procedure, having the epidural shot only weeks before, but I held it together pretty well.  I had a friend drive me (thanks Joan!) and I was glad that she was there in the room with me because after the procedure was over, I felt very anxious and thought I may have a panic attack.  I don't like needles in my neck!!  After a few tears, and a strawberry kiwi juice box (I guess that's what they give their nervous patients), I did my 15 minute wait in the office before I was okay'd to be released into the wild.

Now it's a wait and see if this works.  Fingers crossed...good vibes and prayers welcomed!

Anyone else ever had these procedures done?  Have they worked for you?  If so, how long did you find relief for?